We reached the £300 target for our sponsored walk! I'm very happy right now!
And we're going to beat it! Because my parents, and mums work friends havent even sponsored me yet. As well as anyone else who decides to sponsor us!
http://www.justgiving.com/Danielle-Canavan0
Its amazing, and I'm so so grateful for every single penny that people have given the CF Trust because of us.
If you click here, you can read the post I wrote last month, explaining some of the reasons why I wanted to do this walk.
But basically, I want to do this, in memory and honour of all those people, who cant. All the special people, who have touched my heart, and made me a different person. People who were not much older than me, younger in some cases, who should have had their whole lives ahead of them still. And not just them either, but other people with CF, all over the country and the world, who were loved by their own family and friends.
I have lost a lot of friends to Cf over the last couple of years. Its been hard, and sometimes its easy to just feel like giving up. But I'm still here. And its no good giving up, when I could live my life the best I can, and try to make them proud. And to make sure they are remembered.
And I have a lot of friends who are waiting for transplants. Desperately waiting for that call that will change their lives.
Three beautiful ladies, Chantelle, Kirstie and Lisa, have all just been accepted onto the waiting list for new lungs in the last couple of weeks. Theres nothing I'd love more than to see them get those calls, and be able to do all the things that they cant right now.
This time last year Ellis would never been able to even think of doing this with us. Now, thanks to some truly amazing person, who we'll never know, she is able to. =) I will forever love the donor, who gave her another chance at life. I love my Ellis.
Yeahh, feel the love people. Lol.
I have a lot of love for a few of my friends at the minute. Because as well as Ellis and Danni who are doing this walk with me, some other friends have been plotting away behind the scenes. =)
With no prompting, or suggestions from me, they started planning a Charity night down the Pub. As well as several other individual fundraising sponsored things.
It means a lot to me that they care enough to even think about doing it, let alone actually going ahead with it!
Health-wise, I'm doing okay for now. My sinusitis is playing up, which means daily headaches, and keeping myself constantly dosed up on painkillers. I'm going to have to get referred back to Addenbrookes to get looked at. Which is annoying as my last Sinus surgery was only March last year, and I have a feeling they'll suggest the same route again. =/
But my lungs are okay.
I'm constantly tired, but thats not really new anymore, I am just easily exhausted these days.
I'm looking forward to the summer now.
Theres loads of birthdays coming up over the summer. Liz's wedding in a few months. Danni's 18th to look forward to. Lots of fun stuff. =)
Lovelove xx
♫ I'll be strong, I'll be wrong, Oh but life goes on. Oh, I'm just a girl, trying to find a place in this world. ♫
13 April 2011
Sinuses
Sinus pain.
Is crap.
GRRRRR!
Looks like I'll be getting myself referred back to ENT at Addenbrookes, just what I needed. =/
Oh well. Funtimes.
xx
Is crap.
GRRRRR!
Looks like I'll be getting myself referred back to ENT at Addenbrookes, just what I needed. =/
Oh well. Funtimes.
xx
12 April 2011
30 Day Song Challenge
I finally reached Day 30! So heres a re-cap for those of you who've been paying any attention to my facebook! =)
Day 01 - your favorite song
Breakaway - Kelly Clarkson
Day 02 - your least favorite song
Telephone - Lady Gaga Or anything by Lady Gaga tbh.
Day 03 - a song that makes you happy
Freak Out - Avril Lavigne
Day 04 - a song that makes you sad
Please Remember - Leann Rimes
Day 05 - a song that reminds you of someone
I'll Stand By You - Girls Aloud My Mum.
Just A Day - Feeder Stiv.
Day 06 - a song that reminds you of somewhere
Cant Stop - RHCP Car, on the way to Prom.
Day 07 - a song that reminds you of a certain event
Teenagers - MCR My 16th Party.
Day 08 - a song that you know all the words to
Far Away - Nickelback
Day 09 - a song that you can dance to
5 6 7 8 - Steps
Day 10 - a song that makes you fall asleep
Yellow - Coldplay
Day 11 - a song from your favorite band
Science & Faith - The Script
Day 12 - a song from a band you hate
Baby - Justin Bieber
Day 13 - a song that is a guilty pleasure
Born to make you happy - Britney Spears
Day 14 - a song that no one would expect you to love
Word Up - Korn
Day 15 - a song that describes you
A Place In The World - Taylor Swift
Day 16 - a song that you used to love but now hate
Fight For This Love - Cheryl Cole
Day 17 - a song that you hear often on the radio
Someone Like You - Adele
Day 18 - a song that you wish you heard on the radio
If I Fall - Alice Martineau
Day 19 - a song from your favorite album
Push - Avril Lavigne
Day 20 - a song that you listen to when you’re angry
In the End - Linkin Park
Day 21 - a song that you listen to when you’re happy
Marry You - Bruno Mars
Day 22 - a song that you listen to when you’re sad
Starlight - Muse
Day 23 - a song that you want to play at your wedding
At The Beginning - Anastasia Soundtrack
Day 24 - a song that you want to play at your funeral
Keep Holding On - Avril Lavigne
Day 25 - a song that makes you laugh
Picture To Burn - Taylor Swift
Day 26 - a song that you can play on an instrument
None!
Day 27 - a song that you wish you could play
Hanging By A Moment - Lifehouse
Day 28 - a song that makes you feel guilty
Breakeven - The Script
Day 29 - a song from your childhood
Girlfriend - Billie Piper
Day 30 - your favorite song at this time last year
Fireflies - Owl City
Day 01 - your favorite song
Breakaway - Kelly Clarkson
Day 02 - your least favorite song
Telephone - Lady Gaga Or anything by Lady Gaga tbh.
Day 03 - a song that makes you happy
Freak Out - Avril Lavigne
Day 04 - a song that makes you sad
Please Remember - Leann Rimes
Day 05 - a song that reminds you of someone
I'll Stand By You - Girls Aloud My Mum.
Just A Day - Feeder Stiv.
Day 06 - a song that reminds you of somewhere
Cant Stop - RHCP Car, on the way to Prom.
Day 07 - a song that reminds you of a certain event
Teenagers - MCR My 16th Party.
Day 08 - a song that you know all the words to
Far Away - Nickelback
Day 09 - a song that you can dance to
5 6 7 8 - Steps
Day 10 - a song that makes you fall asleep
Yellow - Coldplay
Day 11 - a song from your favorite band
Science & Faith - The Script
Day 12 - a song from a band you hate
Baby - Justin Bieber
Day 13 - a song that is a guilty pleasure
Born to make you happy - Britney Spears
Day 14 - a song that no one would expect you to love
Word Up - Korn
Day 15 - a song that describes you
A Place In The World - Taylor Swift
Day 16 - a song that you used to love but now hate
Fight For This Love - Cheryl Cole
Day 17 - a song that you hear often on the radio
Someone Like You - Adele
Day 18 - a song that you wish you heard on the radio
If I Fall - Alice Martineau
Day 19 - a song from your favorite album
Push - Avril Lavigne
Day 20 - a song that you listen to when you’re angry
In the End - Linkin Park
Day 21 - a song that you listen to when you’re happy
Marry You - Bruno Mars
Day 22 - a song that you listen to when you’re sad
Starlight - Muse
Day 23 - a song that you want to play at your wedding
At The Beginning - Anastasia Soundtrack
Day 24 - a song that you want to play at your funeral
Keep Holding On - Avril Lavigne
Day 25 - a song that makes you laugh
Picture To Burn - Taylor Swift
Day 26 - a song that you can play on an instrument
None!
Day 27 - a song that you wish you could play
Hanging By A Moment - Lifehouse
Day 28 - a song that makes you feel guilty
Breakeven - The Script
Day 29 - a song from your childhood
Girlfriend - Billie Piper
Day 30 - your favorite song at this time last year
Fireflies - Owl City
10 April 2011
Sunny Days = Ice Cream
Soooo! Its been a good few days!
I saw Sammi on thursday! Which was awesome. I havent seen her properly in years. Definately missed her, and need to see her more. =) And Emma is home for Easter now too, so hopefully I'll see her soon.
The weather has been amazing! Had several days of sunshine, and 20 degree heat! I've even managed to catch the sun, slightly! Yesterday we headed up to Stockwood Park, to go for a walk. And then today we decided to go to Ashridge for a picnic when Ryan finished work. Lots of sunshine, lots of walking, and LOTS of ICE CREAM! =) YAY!
I took loads of pictures in amongst the trees. I definately need to get myself a decent camera, because I love taking pictures. And the 2 megapixels on my phone camera are not cutting it! Haha.
Health wise, I'm doing great! Which makes a nice change. Had a fairly nasty bleed thursday afternoon, but it seems to have been a one off, and after a nap I felt fine again. So its all good I think, for now. =)
xx
I saw Sammi on thursday! Which was awesome. I havent seen her properly in years. Definately missed her, and need to see her more. =) And Emma is home for Easter now too, so hopefully I'll see her soon.
The weather has been amazing! Had several days of sunshine, and 20 degree heat! I've even managed to catch the sun, slightly! Yesterday we headed up to Stockwood Park, to go for a walk. And then today we decided to go to Ashridge for a picnic when Ryan finished work. Lots of sunshine, lots of walking, and LOTS of ICE CREAM! =) YAY!
I took loads of pictures in amongst the trees. I definately need to get myself a decent camera, because I love taking pictures. And the 2 megapixels on my phone camera are not cutting it! Haha.
Health wise, I'm doing great! Which makes a nice change. Had a fairly nasty bleed thursday afternoon, but it seems to have been a one off, and after a nap I felt fine again. So its all good I think, for now. =)
xx
6 April 2011
Get in mah Belly.
Dont ask about the title. I dont even know. Michelle mentioned Austin Powers, and thats all I can think now...
Sooo, now I'm not overdosing on Septrin, I'm picking up nicely. Feeling much more like myself, which is good, cos sunday and monday were scary.
Went up to clinic today so they could take my blood... SEVEN attempts later. Not impressed. But to her credit, the poor nurse kept on apologising. I was upset, but I do know its my veins, and not her at fault, so I kept telling her not to worry.
Bloody hurt though.
Had a crap night last night. Some personal friend issues which are far too complicated and pathetic to bother explaining, but yeah, woke up feeling pissed off with the world. And then the sun came out.
Somehow, the sunshine has this sort of magical way of just making everything seem better. So who cares if one person is being an idiot, I have plenty of other people who I love, who deserve my time. I will be happy and enjoy my life, for them. Screw everyone else. =)
Well, I'll try. Lol. Its not always simple, but I can try.
Went and saw Mel today too. Not seen her and Scarlett much since I split with Matt. I guess I was worried that friendship would be awkward, seeing as it was only really started because of him. But it was fine, so I shouldnt have worried. =)
And seeing Sammi tomorrow! Not seen her in years! Literally! Lol. So that should be awesome! And Pub tomorrow night I think. I wont be drinking because I'm playing nice with my liver for a bit... But some giggles and sugary coke, and who needs alcohol? Hehe.
Finally, the lovely Kirstie Mills got to meet Russell Howard yesterday! Or 'Russ' as she likes to call him now... ;) Lucky girl. Hehe. You can read all about it on her blog.
http://kirstie-2ndchanceatlife.blogspot.com/
xx
Sooo, now I'm not overdosing on Septrin, I'm picking up nicely. Feeling much more like myself, which is good, cos sunday and monday were scary.
Went up to clinic today so they could take my blood... SEVEN attempts later. Not impressed. But to her credit, the poor nurse kept on apologising. I was upset, but I do know its my veins, and not her at fault, so I kept telling her not to worry.
Bloody hurt though.
Had a crap night last night. Some personal friend issues which are far too complicated and pathetic to bother explaining, but yeah, woke up feeling pissed off with the world. And then the sun came out.
Somehow, the sunshine has this sort of magical way of just making everything seem better. So who cares if one person is being an idiot, I have plenty of other people who I love, who deserve my time. I will be happy and enjoy my life, for them. Screw everyone else. =)
Well, I'll try. Lol. Its not always simple, but I can try.
Went and saw Mel today too. Not seen her and Scarlett much since I split with Matt. I guess I was worried that friendship would be awkward, seeing as it was only really started because of him. But it was fine, so I shouldnt have worried. =)
And seeing Sammi tomorrow! Not seen her in years! Literally! Lol. So that should be awesome! And Pub tomorrow night I think. I wont be drinking because I'm playing nice with my liver for a bit... But some giggles and sugary coke, and who needs alcohol? Hehe.
Finally, the lovely Kirstie Mills got to meet Russell Howard yesterday! Or 'Russ' as she likes to call him now... ;) Lucky girl. Hehe. You can read all about it on her blog.
http://kirstie-2ndchanceatlife.blogspot.com/
xx
5 April 2011
Overdosing... Oops.
Sooo. I'm an idiot.
For the last 5 days, I've been overdosing myself on Septrin.
When I'm in Papworth, or I've had a prescription from there, I have to take 2 480mg tablets. But my chemist at home supplies me with 960mg tablets.
Now I KNOW this. My chemist has ALWAYS given me the same version. But for some reason. Since I came home wednesday night, I've been taking 2 960mg tablets, at each dose. Habit I think.
I only discovered this today.
My chest was really tight, and my breathing is pretty rubbish. My resp rate and pulse have been stupidly high. And I've been having really bad headaches, which I had assumed was my sinuses, which had confused me anyway, cos my sinuses normally improve with IVs... But this makes sense now! Lol. And I'd just felt generally rough today. I was shaking and shivering constantly, had no energy and I was scaring myself a little.
I actually text Matt, to see if among his medical contacts, he had someone who would know what the best thing to do was. We're getting on okay-ish recently and we're back on speaking terms, and I hate on-call doctors. With a passion. But between texting him, and him ringing me back, I totally panicked at just how bad I felt. And everything always feels worse and more significant when you actually KNOW there is a problem. So I rang Papworth, and put up with the fact I'd have to deal with some on-call dr. (Because naturally this had to happen after the 9-5 CF nurse hours. GRR!)
So anyway, I rang Papworth to inform them of my stupidity, and ask their advice, and theyve said to stop it completely, and come in for clinic on wednesday. Need to have blood tests done now to check if I've done any damage to my liver, because thats already temperamental.
At least I now know WHY I felt so bad. And hopefully I can start to improve now.
I still feel pretty crap, but I'm hoping it'll slowly ease up.
I amaze myself with how thick I am at times. I mean, with the amount of drugs I'm on, I was bound to mess up one day. But 5 days in a row is kinda extreme... Certainly wont be making this mistake again.
And yeah... Let the mocking commence.
xx
For the last 5 days, I've been overdosing myself on Septrin.
When I'm in Papworth, or I've had a prescription from there, I have to take 2 480mg tablets. But my chemist at home supplies me with 960mg tablets.
Now I KNOW this. My chemist has ALWAYS given me the same version. But for some reason. Since I came home wednesday night, I've been taking 2 960mg tablets, at each dose. Habit I think.
I only discovered this today.
My chest was really tight, and my breathing is pretty rubbish. My resp rate and pulse have been stupidly high. And I've been having really bad headaches, which I had assumed was my sinuses, which had confused me anyway, cos my sinuses normally improve with IVs... But this makes sense now! Lol. And I'd just felt generally rough today. I was shaking and shivering constantly, had no energy and I was scaring myself a little.
I actually text Matt, to see if among his medical contacts, he had someone who would know what the best thing to do was. We're getting on okay-ish recently and we're back on speaking terms, and I hate on-call doctors. With a passion. But between texting him, and him ringing me back, I totally panicked at just how bad I felt. And everything always feels worse and more significant when you actually KNOW there is a problem. So I rang Papworth, and put up with the fact I'd have to deal with some on-call dr. (Because naturally this had to happen after the 9-5 CF nurse hours. GRR!)
So anyway, I rang Papworth to inform them of my stupidity, and ask their advice, and theyve said to stop it completely, and come in for clinic on wednesday. Need to have blood tests done now to check if I've done any damage to my liver, because thats already temperamental.
At least I now know WHY I felt so bad. And hopefully I can start to improve now.
I still feel pretty crap, but I'm hoping it'll slowly ease up.
I amaze myself with how thick I am at times. I mean, with the amount of drugs I'm on, I was bound to mess up one day. But 5 days in a row is kinda extreme... Certainly wont be making this mistake again.
And yeah... Let the mocking commence.
xx
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