RIP Charmaine xx

As if I needed them, CF has decided to come along and give me even more reasons to do this walk on sunday.

RIP Charmaine xx

Its a harsh reminder, of just why I wanted to do this in the first place. So that this will STOP happening.

So that we can stop losing our friends.
So that parents stop losing their children, and children stop losing their Mummys and Daddys. So that people stop losing their partners, the ones they love, the ones they care about.

Walking for those who cant...
Its a phrase I've kind of adopted the last few weeks, when I think about this. It keeps me focussed, on exactly why I'm doing this. Because I've had my moments when I wonder what on earth I'm thinking of.
And then I think of Marc. And Georgie. And Louis. And Ed. Ally. Jordan. Suzy. Gaz. And the list of people which is just far too long.

I want to walk for all those people we've lost along the way.
And all those people who physically cant anymore. I still can. I'm not reliant on oxygen or a wheelchair yet.

And not just them, but all the families and friends too. Everyone that CF is hurting or has hurt.
In the hope that one day, this will all be over. One day, CF wont be able to hurt anyone.

I know 10km/6 miles isnt THAT far, in comparison to marathons, and people who climb mountains and stuff. But to me, with my lungs, its practically a mountain. With a lung function that sits between 35-45%, it makes a big difference.

http://www.justgiving.com/Danielle-Canavan0

Thankyou, to everyone that has sponsored us so far. People have been amazing. =)

I'll leave you with a few pictures from Ashridge.
Drove up with Ryan today, so he knows where hes going at the weekend when he takes me and Danni.
Note to all Sat Nav users: Sat Navs LIE. Lol.

Love xx

Ashridge 10km Walk

http://www.justgiving.com/Danielle-Canavan0

So, I've mentioned it before.
On the 8th May 2011, I will be taking part in a sponsored walk for the CF Trust along with 2 friends.
Ellis, and Danni.


Ellis also has CF, and in August 2010 she was lucky enough to get a Heart and Double Lung transplant. Every single day I am grateful to the donor and their family, who gave Ellis back to us, and gave her another chance at life.
We met Danni in hospital, on our childrens ward, because she had pleurisy. Her mum works on the childrens ward as a play specialist, and Danni's got to know many people with CF.

I love them both so much, and cannot imagine a life which they are not part of. And I thank them so much for agreeing to join me in this.

xx

Today I thought I'd explain some of the reasons I wanted to do this walk.

http://www.youtube.com/watch?v=RYa4ijCisfk

Marc Prosser.

He was my main inspiration for wanting to do this.

I met Marc in Papworth hospital, and he was an amazing guy. We soon became good friends, talking, texting, msn-ing pretty much every day. If I didnt speak to him for a couple of days, I'd get a message telling me off. LOL!
I remember him telling me how he wanted to propose to his girlfriend, Marie. I was over the moon when I got the text, out of the blue, to tell me they were engaged.
Marc always used to refer to me as his 'little sister', and to be honest, I suppose I thought of him like a brother. I trusted him with my life, and told him absolutely everything. If I'd had a big brother, I could not have asked for anyone better. He will always be my big brother.
Unfortunately, on the 8th July 2009, he was taken away from us.
I loved him, and I miss him every single day. Hes left a hole in my life and my heart, which no one will ever quite be big enough to fill.

Marc used to run Marathons.
There is no way I could run a marathon right now. It is going to be near impossible to walk 10km, but if there is one thing he taught me, its that you can do anything, if you put your mind to it.
So this is for him. It may not be much, but its the best I can do right now. I do this in his memory.

And the memory of all my other CF friends, who have left us far too soon.
Its a list, which unfortunately just keeps on growing.

Marc Prosser
Shahara
Georgie Steadman
David Downes
Louis Blackledge
Nick Jollyman
Ed Nicholls
Naoishe Doherty
Gaz Torrance
Louise Haxley-Strachan
Suzy Sadler
Jo Dowling
Vicky Dobbins
Ally Morgan
Greg Barrow
Jess Wales
David Gilmour
Mike Ward
Jordan Caprani

RIP Angels

And these are just a few, of the people with CF who lose their fight each year. Each month. Each week. Each day.

These werent 'old' people. Some of these people were lucky enough to reach their 30's. Others weren't.
Georgie was 17.
Jordan was 15.
Shahara hadnt even started high school.

These are people who should have had their whole lives in front of them.
People who were Husbands and Wives. Sons and Daughters. Brothers and Sisters. They left behind people who loved them dearly.

So... I'm walking, for those who can't.
I'm walking, to raise money for the CF Trust. And more importantly if anything, to raise awareness.
There are still far too many people, who have no idea what CF is, or what it means. I'd really love this to change.
It affects about 8000 people in this country, it should be much better known than it is.

When will CF stand for cure found?

xx

And in the mean time, how many people have to die waiting for a transplant?
We desperately need more Organ Donors.
Ellis got lucky, she got her transplant, although still at the very last minute.
Lots of other people arent so lucky.

Live Life Then Give Life.
http://www.lltgl.org.uk/

xx

If anyone can spare a few pound to sponsor us, that would be greatly received, because every little bit helps.
I dont expect everyone to sponsor us. Its not practical, I know. (Although, I'd totally love it. Lol.)
But if reading this, gets you thinking or better yet, talking about Cystic Fibrosis, and Organ Donation, then that makes me just as happy.
Because awareness is important too!

Lovelove xx

Jordan xx

Jordan Carissa Caprani

Sweet dreams, little lady.

Rest in Peace.

Pshh, who am I kidding... Party hard babe!

Show those angels how to party.

xxxx

Sweet Dreams, Angel

On the morning of the 1st March 2011, Louise Haxley-Strachan, one of the sweetest, most genuninely caring and beautiful people I've ever met, left us to join the angels.

Sleep tight now, Lou.

We'll miss you, special lady. The sky has an extra star now, shining bright.

xXxXx

='( Breathe Easy David

And just when life looks like its taking a turn for the better...
It has this funny way of turning round and biting you in the arse.

Breathe Easy David.

Not really sure what to say tbh. I never saw this coming. =(
Just love you lots little mister.
And I'm gonna go cause some mayhem on your behalf.

<3

My friend Nick passed away a little over a month ago. He was an amazing guy, but we all knew how ill he was. He'd been in Papworth for months. It was a period where I was refusing to be admitted for various reasons, and was having to go to clinic once a week. So each week I'd go and wave, or take him a card. He had a lot of cards from me with random pointless messages in. =) I was admitted at the beginning of December, and whilst I was there everything got drastically worse and the doctors said he wouldnt make it til christmas. He fought hard but in the end he passed on the 23rd.

I'm not sure which is worse for those who are left behind, to know its coming, or to just be caught unaware. It hurt to watch Nick slipping away before our eyes, his body giving up, but at least everyone had their chance to say goodbye, and make him feel as loved as possible.
When these things just sneak up on us, there is so much left unsaid.

Lovelove guys xx