Annual Review Results =)

Had my results todayyyy...

All in all, it was better than I expected.

My lung function was the main down point. It has slowly declined over the year, as always. They showed me the graphy thing, its all a bit downhill. =/

BUT, on the other hand, my walk test was really good. The consultant said it was better than expected, for someone with my lung function. So thats always good. And the fact that my oxygen levels are normally pretty good, is another positive.
Just have to hang on to my lung function now. Try to stay in the 40's and not the 30%'s.

My IV requirement is higher than they'd like. But they admitted themselves, that theres not much they can do about that because I cant tolerate most nebulised drugs. Its just a case of doing the best we can.

My liver stuff was all pretty stable from last year. Had a few blips, but my IV requirement means my liver is always gonna suffer a bit.

And somehow, the glucose tolerance test results were actually better than last year!
Apparently overdosing on lucozade is the cure to diabetes... ;) Haha.
I still have 'impaired glucose tolerance', but the fact it was better, and not worse, is always a bonus.

Theyre referring me back to Addenbrookes now, because of my sinuses. Because I complained loudly today about how much pain I'm having. I'm reliant on painkillers, which I dont like. Fun times. Probably gonna mean more surgery eventually. Meh.

As for todays general clinic-ness, my lung function was 44%, which I was quite happy with cos I feel okay. Been started on Steroids and Antihistamines, because I've had a slight cough, but we think that could be more hayfever than anything.
Andddd, providing everything goes to plan, they dont want to see me for SIX WEEKS!!!!!

I'll believe that when I see it... ;)
Gonna have a damn good try though.

Now, time to enjoy my summer! And plot all kinds of fun stuffffff!

xx

OMG. Its MAY?!

I cant believe its MAY! Already!!
I swear, its only JUST been christmas! This year is disappearing, I dont understand! Lol.

1 week to go, until our Sponsored walk!

The weather has been amazing the last couple of weeks, and I really hope it can hold until next sunday for us. It will be much nicer if the sun is shining. And we can take some really pretty pictures, because Ashridge is gorgeous at the minute. Its like a carpet of bluebells in places.
We've raised just over £430 so far, and we're still going! Its been amazing. =)

My friend Pete had his head shaved friday night as well. He has raised over £350 so far for the CF Trust.
My friends are so amazing at times...

I have sent over 1800 text messages in the last 2 weeks. Haha, I dont know whether to be proud, or a little scared.
I think Stiv and Gavin are probably responsible for most of those tbh. I dread to think how I'd cope if I wasnt on contract. Lol.

Gavin has been amazing, the last couple of months. Hes very quickly become one of the most important people in my life. =)

OMG. Royal Wedding!!
Now, I have to admit, during the lead up I was completely fed up of hearing about the wedding, and had very little interest in it.
But I got up friday morning, and put the TV on, and started watching... And I was hooked. It was amazing, the way William and Kate look at each other, the love was so clearly visible in their eyes. They looked so happy, and natural together. And of course, she was BEAUTIFUL. As was everything.
Except that hat Beatrice was wearing... LOL! She looked like a reindeer. Hehe.
I was so loved up by the end of it, and it wasnt even me getting married! Haha. It really was like watching a disney film.

Now, I just have to go find myself a prince. =)

Annual Review results on wednesday... Yay. Not.
That'll be fun. Go sit in a room, while they tell me things that I could have told them. That my lungs/liver/blood sugars/everything is slightly worse than last year. But not bad enough yet to do anything about. Thats pretty much what theyve said every year. Haha.
On the plus side, I'm single this year. Which means they wont surprise me with the whole sex and making babies talk I got last year. Lol.

Its my last chance for a check up before I go wandering 10km through the trees too, so hopefully it'll all be fine.
I feel okay, anyway. Not 100%, but okay. Just need to take things easy this week, and keep myself okay. =) And keep this stupid sinus pain under control. Lol.

Anyway, thats all for now I think.

Lovelove xx

Need more SUGARZ!

http://www.itv.com/westcountry-west/2-years-left-to-live02278/

http://kirstie-2ndchanceatlife.blogspot.com/

Interview with the very lovely Kirstie Mills. =) And the link to her blog.

xxxx

Urgh, hypo'd this morning, fairly epically.
I havent had a hypo for a little while now. Which, is good seeing as I'm NOT even diabetic. But I've been stubbornly 'borderline' for about 3 years now. Its usually only if I'm particularly ill, or on steroids that they play up noticeablely though.
But this morning, I get up, wander round, take my pills... The usual. Feeling a little tired, but thats the usual too. Then I notice I'm a little shakey, when I cant put my pills in my mouth. And then out of nowhere, I'm shaking big time, dizzy, feeling faint, and I cant see properly because everythings gone fuzzy.
NOT fun. Especially not when I'm the only person in the house.

Oh well, better now. Still feel a little weak and not quite right. But at least I can see!

I'm supposed to be going into Papworth at the end of next week, for a week of IVs before my annual review. Butttt, I really dont feel like I need it at the minute.
If we hadnt planned for it, I'd have been a mess by now, sods law. Lol.
Sure, I dont feel great. But by my usual standards I'm pretty good! And pumping myself full of drugs seems a waste of time, as does being stuck in hospital, and taking up a bed someone else needs.
I wont cancel yet, because this is me, and I'm not tempting fate! A week is plenty long enough for me to go downhill. But if I still feel good next week, I am not going in. =)
Would be nice to turn down a bed, rather than be desperate for one, just for a change.

Lovelove xx

Sponsored Walk - Justgiving Page. =)
http://www.justgiving.com/Danielle-Canavan0

Thoughts for today.

Its horrible, missing someone, and not being able to tell them, because you know they wouldnt care anyway.
Applies to a few people in my life right now. =/

Annual Review next month.
Urgh. I hate these things.
They tell me nearly the same thing every year. My lung function has declined over the year. The glucose tolerance tests have got slightly worse, but I'm still just 'borderline'. My liver ultrasound is not great. Etc etc.
Basically, everything is worse. Well, duh. Couldve told them that myself, without spending about 7 hours sat in the hospital.

And Clinic on wednesday, fun times.
I did actually finally remember to ring the hospital and book transport for clinic. So I can get there now. Always handy.
God I wish I could drive.

*At this point, I randomly remember the giant Jelly I made this morning, is sat in the fridge, untouched. And feel I should tell you.*

I'm not totally insane, this thought was prompted by a text conversation with Stiv, about sugar.

*I also now feel the need to tell you, I typed 'conversation with sugar about Stiv', before I checked this for typos.*

I watched the dispatches program about hospital food tonight. Not something I would normally have watched, because I've experienced hospital food first hand enough times to know how bad it is, but Jordan was on it. So I did.
We are lucky to have options other than the crap on the menu, but to be honest, a lot of the other patients dont, and it really needs sorting. If i relied on the hospital menu while I was ill, I'd be in trouble.

The cat keeps sitting on me. Its cute, to begin with. Now all of a sudden, every time I sit down, he appears, and curls up on my lap. No matter where I am.
I was trying to get ready to go and meet mum from work earlier, so I moved him off my lap, and before I even had time to stand up, he was back on my lap!! Determined little creature. Bless him.
Excellent hot water bottle though.

Also, I have a new obsession with Jam sandwiches.
Totally Tori's fault. =/
Tasty habit though, better than smoking. And cheaper than alcohol. Haha.

Lovelove xx