Totweek and Stuff =)

Hey guys!!

So, I had an amazing time while I was away!
I made it all the way to Darlington without any trouble on the trains, which is basically a miracle in itself. =P
And somehow I resisted the urge to go to Hogwarts...



And I reminded myself of just how gorgeous St Pancras Station is. It is such an amazing building.


And I loved every second while I was there. Everyone made me feel so welcome, and I cant wait to go back!!

Got my sinus operation booked for the 15th September now. I'll give myself a couple of weeks to recover from that, and then I think I'll be heading back to go see everyone. I cant wait!

Off out tomorrow night, to a BBQ/Party for Clives birthday. Will be strange because I havent spent any real time with that family for a long time. Me and Ryan grew up with Paula and Clives children.

Then next weekend is Liz's hen night! And the following weekend is her wedding!! EEEEEEEP! So excited for her. =)

xxxxxx

Catch Up

Hiiiii.

So yeah, I'm still here! I've just been really quiet for a few weeks.
Basically, because I've just had complete writers block, and nothing worth writing about.

I was only in hospital a couple of days after my last post, and then the doctors sent me home because the drugs werent making me better, and were just making me sick.
Shortest admission ever.

I had clinic at Addenbrookes about my sinuses, (FINALLY) and the Consultant, (Same one I saw last year!) thinks I will probably need another operation. We're just waiting on a CT scan, to confirm what he thinks.
So I have a CT scan booked for the 20th, and then clinic again on the 21st. Wow, thats a fun couple of days. Lol.

Its nearly time to go up north!! SO EXCITED. Just 2 more sleeps now and then off to see Michael and Clairey!!
Will be leaving Leagrave about half ten on thursday. Not long now!! I'm pretty much packed, just the last minute stuff left, like chargers.
Good job really, because half my case it taken up by bloody birthday presents!! 8-)

Anyway, I daresay I'll have loads to tell you when I get home next tuesday. And then theres lots of stuff coming up, so I should be back a bit more. Birthdays, Lizs hen night, Lunches with friends, lots of exciting fun stuff!!

Love you all.
xxxxx

Sneak Tot Attack!

Soooo.
I'm back in Papworth. Today was day 4.

Fun times.
On Imipenem and Septrin. And wow, that combination has somehow majorly upset my reflux. I cant eat anything without wanting to be sick. Its not pleasant, and it hurts. A lot. =(

Which meant, I was all mopey and sulky because I had to miss Danni's party on saturday night, and I couldnt go to London to see Michael and Claire yesterday.
I did miss Danni's party... I was NOT expecting Stiv and Claire to turn up in my doorway yesterday afternoon though!!!!!!!
And they had orange lucozade, which is always good. Hehe.
(Trying to make the change from calling Michael, Stiv. Because I prefer Michael, tbh. But its habit to call him Stiv. Plus people would have no idea who Michael is... Lol.)

I was soooo happy. If was so good to finally just hug them! And now I'm even more excited to go and stay with them. 2 and a half weeks to go! =)

My signal here is even worse than it usually is, and its been driving me crazy! I do seem to finally have found a spot which at least allows me to get texts when they are sent, rather than 3 hours later. So thats an improvement! And it means I can actually talk to Gavin again now. (Poor Gav.)

Anyway, yeah, in hospital. Far too much time to think.

I've been particularly lonely this admission. I dont know people on the ward, which is unusual for me. I feel rough, and I dont always know who to turn to.
Its times like this I miss having a boyfriend, just because it didnt matter what time it was, if I needed someone to talk to, I'd just call. I didnt feel guilty if I woke him up.

Its silly really. But when you're throwing up at like 3am, or in agony and cant sleep, its nice to have someone to go to. =(

xx

Tot Birthday!!

Happy Birthday Stiv/Tot/Michael!!!!

<3

Giant Epic Uber Hugs.

xxxxxxxxx

Cough, Cough, BLOODY COUGH.

If they made coughing, a sport... I'd be in there!!

SO fed up today. Cant even catch my breath properly just laid on my bed, because I cant stop coughing long enough.
And I'm bloody exhausted, even though I'm napping loads. Because I'm not getting any proper sleep. Its always just an hour here and there. =/

So back to Clinic this week I guess.

I have plans thursday night, saturday night AND sunday. Which even if I still manage all of, will probably be ruined by coughing, exhaustion and IVs.

CF Sucks. It ruins EVERYTHING.

I Hate Stairs.

Rawr! =)

Feeling slightly better than a few days ago, which is always good. Still not right though. My lungs hate me at the minute, I am CONSTANTLY breathless, on the most tiny and minimal effort. And then it takes me ages to get my breathing back under control. =/
Was getting home from town yesterday... 3 flights of stairs to get up to the train station... And then another flight of stairs when I got back to Leagrave. Its only a 4 minute train ride, I hadnt even recovered from the first lot!! I NEED TO DRIVE!

The stairs at home arent really fun either.
Its funny, because if I'm distracted, or excited, or hyper, I forget myself and try to run up the stairs at home.
It lasts about 4 steps.
I sort of crawl up the rest...

But oh well. We'll get there. I have far too much to look forward to, to let this get me down.

I escaped Clinic without IVs on wednesday... WIN! My lung functions were fairly stable at 41%, but I was wheezing a bit and feeling tight chested, so we decided to try some steriods and see how it goes. Doctor didnt seem to think my problems were infection based, and I agree, so home IVs seemed a bit of a waste of energy.
Got to go back on the 29th. To check I'm well enough before going up north. =)

Got to see Gavin after Clinic too. (More WIN! Lol.) I dragged him round town shopping for birthday presents. He survived the Disney store... AND Early Learning Centre! I'm quite proud to be honest.
He has this obsession that I am like Pam, from The Office US. Personally I have never watched it, so I have no idea if this is a good thing or not, lol. But he thinks I should do my hair like her now.
She actually has amazing hair, I would LOVE hair like hers. Might try it sometime, just to keep him happy.

Want to get this weekend out the way now.... Looking forward to next week. Got the Charity night down the pub on Thursday, and then Danni's Party on Saturday, and off to London to see Stiv and Claire on Sunday.
Gonna be exhausted by Monday, but it will be soooo worth it. <3
Will get lotsss of pictures too. Need to add to the collage on my wall. =)

Some of you will know, that the very beautiful, and amazing Kirstie Mills got married yesterday. She is now Mrs Kirstie Tancock.
http://www.itv.com/westcountry-west/wedding-for-kirstie94256/
She looked absolutely perfect, just like a princess. I wish her and Stu all the happiness in the world, and hope that she gets that call for new lungs very soon.

xx